From Wayne’s perspective, think about what is best for the person, rather than automatically deciding to send someone to the emergency department at the hospital, because “maybe that is not always the best solution to the problem.”
Karen believes in doing things differently for those diagnosed at an earlier age, like her mother. In many cases, people who are diagnosed with early onset dementia, remain very active, vibrant and healthy.
Peer support groups are a place of real honesty and you discover through all of that, that there is life with the illness.
Fiona was diagnosed with posterior cortical atrophy (PCA) in 2017. Inspired by a suggestion in an online PCA support group, Fiona’s daughter wrote a simple document that explained the challenges Fiona was facing.
Myrna came to realize that just because you are diagnosed with dementia doesn’t mean life is over. Somewhere along the line she got permission to be happy, and she sees that as a pivotal moment in her life after diagnosis.
George and Joan became involved with the Alzheimer Society in their community shortly after Joan’s diagnosis. When George found out about the Forward with Dementia project, he was thrilled!
A diagnosis can be traumatic, but the journey can still hold a lot of beauty. Learning to be open about a dementia diagnosis with those around you may help. Read Catherine’s story about her and her mother’s experience here.
Although it was not easy, I’m grateful I had that time with my Mom when she probably needed me most.
Rosa was pleased that despite Arnaldo’s dementia diagnosis, they were still able to go on their trip.
The dementia diagnosis was a shock to them both. Maeve and Kerrie talked at length about their future and the best way forward.
It’s hard to hear anything after the diagnosis, so my advice is to ask your doctor for written information. That way you can look at it and digest it after you get over the shock.
It was important to talk to her friends and acquaintances, explain the changes in behaviour, and ask them to continue to be her friends.
So often our pets help us to cope better. They are great company, their love is unconditional, and they have a sense of when to be relaxed.
